Okay this is for all of you males that might read this including you Sloner. This has some funny female stuff in it so you may not want to read it. As women we have to go through some pretty embarrassing stuff. Devree has chosen to make light of it. When she got her lumen lines put in they come out exactly in the middle of her breasts. The first thing she said is "Mom these tubes make my boobs point in different directions". I said "You mean like North and South?" Then I started laughing because that means that the boobs would be pointing Up (North) and down (South). I expl;ained this to Devree and she started laughing and said "More like East and West MOM!" Then later in the day when the medical staff whips her T-shirt up quite a few times to get to the lines exposing her breasts each and EVERY time she says "Mom I need some Mermaid shells! You know some self sticking ones." I laughed at that. I told her that maybe we could go shopping for some and Devree said she would like some button up front shirts so maybe she wouldn't have to expose herself so many times in a day. Her dressing around her lines prevents her from wearing a bra comfortably but we are asking for some ideas. If anyone finds something that might work, Let us kinow.
After Devree's surgery with the installation of the lines, the staff gave her Morphine. It was a blue liquid and that same day Devree started her menstrual cycle. She took the morphine and she said "Mom this isn't even any good, because it isn't even touching my CRAMPS!"
So the next night there was a potluck at the Target House and we talked to another Mom from San Diego with the 17 year-old daughter with Medulloblastoma. They are on their last round of chemo. She has been a great source of info. She was telling us to ask for the nightly IV right away and she called it TPN. She said that her duaghter wasn't eating anyway so you might as well give her nutrients and medications while she is sleeping because they will give you a home line so you can just connect it through the lumen lines. She also told us that they will give Devree medicine to stop her cycles during chemo because they don't want her to have to deal with that too. I was talking to Devree later and I said we are going to have to ask for that IV stuff right away, because you already don't eat. What was it called again?" Devree said I think it was called a tampon." I started laughing and I told her "We are not going to ask them for a Tampon to go in your IV." Later I realized that Devree was pretty close because it is TPN. Devree just added A-M-O.
So my advice is to have A-M-O kind of day. A Magnificent Opportunity.