Well another early morning catching the shuttle at 7:15 and being here for a ton of appointments. We got weighed first thing and Devree has gained 1 1/2 pounds since Tueday. Isn't that awesome? The first time since I had babies, that I am excited about weight gain. She definitely is eating well. This morning she didn't eat very much "Fruity Pebbles" but I don't blame her. I think they were a little stale from Shay and Dane leaving the box open. Devree has been saying that food tastes good and not so weird anymore. I have been proud of her for keeping an acurate food diary and asking the correct amounts for what she has been eating and drinking. She could drink more water, but I am not complaining or hounding her about it.
We are meeting with E clinic and the nutritionist and pharmicist. Devree cut out her Ativan yesterday in the medicine room. I still give her an ativan and a 1/2 of a Finergan at night. We are having to go to the medicine room at 7:30 pm to get hooked up for her TPN that they are tapering down the time. They trust me to unhook by myself. We meet with Physical Therapy and Elizabeth the psychologist today. I want to ask Elizabeth how long Devree needs to be on the anti-depressant. I also will be asking Lindsey in E clinic how long Devree will have to have her other medications. Devree is down to one gel cap at night. I mash all of her pills and put them into that because it is easier for Devree to swallow. This is good news if she has to take the huge Septra pills she hates. I can mash them up and put it in a gel cap.
Have an awesome Thursday and remember you can be as happy as you want to be...no matter what!