1/21/2009 11:13 PM
Today was a wonderful day. I went by my office to get some information that we would need when filling out paperwork. What a wonderful group of people I work with. They had all chipped in a little to help with things in the short term. We feel encouraged by St. Jude that we will be able to deal with things financially long term. I didn’t leave without receiving many hugs and heart felt words of encouragement. I am so grateful that everyone has been so understanding and supportive. As I left, my heart was full thinking of how kind and caring these people are.
Our good friend Shannon Quilici came to visit and she was an answer to prayers in many ways. She has had to overcome paralysis in her face. Her smile is so sweet today, that you would never guess that there was a problem. She did so much to lift us through this difficult time.
Then we got a call from St. Jude. The paperwork is in!!! We need to arrive in Memphis, Tennessee on Monday. The idea is that we need to be rested and fresh for our first appointment on Tuesday morning.
Season told us, “Chase says that the spinal tap hardly hurts at all.” Chase is an expert. She had the same cancer Devree has, and she beat it. She is a little hero and she is inspiring us. Season met another high risk Medulloblastoma patient (like Devree) when Chase was being treated. This girl has been cancer free for 4 years now.
The last good thing for today was the cancer support group that we got to meet locally. What wonderful supportive people they all are. I had to wince just a little though. They are dealing with things that I am not letting myself think about yet. We went as a family. They had the parents, teenagers, and younger kids broke into separate groups. We had a good enough experience that our whole family plans to go again next month.
I love you all!!!