1/17/2009 9:01 AM
A Devree is chillin in her Jonas Brothers hat turned into a, "Dad not now!" picture. I didn't realize her expression until posting this. She smiled the first time. Honest!
Devree and Jonas Bros hat.
In spite of all this "other news", we have been happy because Devree is perking up and starting to smile. When you are only allowing yourself to fight the battle one day at a time, that is a wonderful day. Right now we are in the lull before the storm and we are enjoying every minute.
I know we are supposed to be positive, but during this calm happy time, it has given me time to think a little about our worries.
Making this change from Stanford’s Medical Facility to St. Jude Children’s Hospital is the right thing for Devree. It is difficult though. The team here at LPCH has taken us from a place where everything is out of control, to a place where we are extremely supported.
Our Social Worker Tova has done so much to support us. She is there when we talk to the Oncologist. She is there when we get bad news. She helps us find out about programs and resources that help us resolve our concerns.
If I have a question I can go to the library and within minutes they hand me books that answer the questions. There are people that come by to ask us if Devree would like to be involved with crafts. No matter what our concern has been, we are quickly introduced to someone that can help.
Our Neurosurgeon Dr. Edwards has been so wonderful. Now he won’t be available to answer questions about neurological questions like the tingling face and tongue.
We also need to transfer Devree’s history and continue forward without wasting any time.
Now Shana is being the strong one and reminding me that our goal for today is to get Devree from Palo Alto, CA to Dayton, NV. I am so thankful there are two of us.
Thank you again for all of the prayers and support. Devree was just saying how she loved Aunt Mary’s comment yesterday. Thank you so much for your kindness and support.
We are actually leaving now we will be in the car at 11:00 AM.