Saturday, January 17, 2009

Today's Goal is Driving from Palo Alto, CA to Dayton, NV.

1/17/2009 9:01 AM
A Devree is chillin in her Jonas Brothers hat turned into a, "Dad not now!" picture. I didn't realize her expression until posting this. She smiled the first time. Honest!

Devree and Jonas Bros hat.

In spite of all this "other news", we have been happy because Devree is perking up and starting to smile. When you are only allowing yourself to fight the battle one day at a time, that is a wonderful day. Right now we are in the lull before the storm and we are enjoying every minute.

I know we are supposed to be positive, but during this calm happy time, it has given me time to think a little about our worries.

Making this change from Stanford’s Medical Facility to St. Jude Children’s Hospital is the right thing for Devree. It is difficult though. The team here at LPCH has taken us from a place where everything is out of control, to a place where we are extremely supported.

Our Social Worker Tova has done so much to support us. She is there when we talk to the Oncologist. She is there when we get bad news. She helps us find out about programs and resources that help us resolve our concerns.

If I have a question I can go to the library and within minutes they hand me books that answer the questions. There are people that come by to ask us if Devree would like to be involved with crafts. No matter what our concern has been, we are quickly introduced to someone that can help.

Our Neurosurgeon Dr. Edwards has been so wonderful. Now he won’t be available to answer questions about neurological questions like the tingling face and tongue.

We also need to transfer Devree’s history and continue forward without wasting any time.

Now Shana is being the strong one and reminding me that our goal for today is to get Devree from Palo Alto, CA to Dayton, NV. I am so thankful there are two of us.

Thank you again for all of the prayers and support. Devree was just saying how she loved Aunt Mary’s comment yesterday. Thank you so much for your kindness and support.



We are actually leaving now we will be in the car at 11:00 AM.


PaulaShawn said...

Happy Day! We are so proud of you and amazed by you! Can't wait to have you sleeping in your very own bed, with your brothers bouncing around you. Enjoy the beautiful drive home and be safe!

tammyella said...

oh my gosh Devree, that's awesome!!!!!!!! you're finally GOING HOME!!!!!!!! if you're up to it, maybe i could come see you tomorrow or monday since i don't have school on monday????? i'll call you later if you don't call me first to see if we could work something out. i've missed you sooooooo much, and i can't wait to see you!!!!!!! <3<3<3<3<3


walkinourshoes said...

We are so happy for you, Devree. Home Sweet Home! I bet your brothers are so excited, too. We love you, so much.
Love, Criag, Koe, and Kylee

The Birge's said...

I LOVE the hat!!! You are in our thoughts and prayers and hearts and stuff. We all luv you very much. I can't wait to prank the adults at the next family reunion!! Maybe you can talk to the Jonas brothers at their next live computer chat and act really sick and maybe they will come and visit you...just a thought...if they do come, you have to let me in too....J/K... we really do love you and are thoughts are always with you!

with lots of love,
Kelli (and the rest of the Birge family)

Staci said...

So Happy! You are coming home. HOME. There's nothing like it and it makes me so happy to know that you will be able to sleep peacefully in your own bed. Every night I thank my Heavenly Father for MY bed. Simple things are the best. And a gift. Can't wait to see you, Devree.

Breck, Celest, Tayzia, Talon, Kallie, and Jackson Rice said...

We are s-o-o-o-o-o happy that Devree is coming to Memphis!!!!! We can't wait to spoil her rotten. We are also grateful that she is going to be at St. Jude. . . . . it is an AMAZING hospital and you will be surrounded by the most talented doctors in the world. We love you all!

soggycheerios said...

Welcome Home!!!
The O'Barrs